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Thursday, March 15, 2012

2011 Results and Diagnosis

Jan 17, 2011 – 12:45 PM, Dr. Anthony G. Rogers Results of lung biopsy
As we are going up in the elevator I remember what had happened forty one years ago to the day. I had buried my first husband, Harold. I mention this to Ann as we ride up in the elevator. My bad feeling just keeps getting stronger.


Dr. Rogers is a very nice man, who has to give me a bad diagnosis. There are now two masses in the lung instead of only one. It is small cell/large cell carcinoma. Whatever that is; I will have Ann to research it and tell me exactly what we are facing. I know it’s cancer but what kind is it?


Dr. Rogers is going to contact Hospice. Ann panics because she knows that means that I only have six months max; but Dr. Rogers says that Hospice isn’t like that any more. They are there to be of help to everyone; the care giver and the patient. I still have my doubts, we will see.


NOTE: When I did the research on the small cell/large cell carcinoma I found out that by the time it was diagnosed it was really too late to do anything but wait for the end. Mother had made me promise that I would hold nothing back from her, no matter what I found out. I tried to keep this information from her, but she kept asking until I just handed her the information that I had printed out. She took it better than I did. But that isn’t surprising; she has always been a stronger individual than I am.

Wednesday, March 14, 2012

2011 Lung Biopsy and Bronchoscope

2011 - January 14, – 10:00 AM, Central Baptist Hospital CBH Bldg D, Tower Elevators, Lung Biopsy
Jan 14, 2011 – 10:00 AM, Central Baptist Hospital           CBH Bldg E, Tower Elevators, 2nd Floor, Bronchoscope
There are two procedures to be done today. I don’t have a good feeling about any of this. Today is January 14th, it is forty one years to the day that my first husband, Harold, turned to me and said, “Bert, I don’t feel very well.” He then passed out and slumped over the wheel. I started screaming and trying to get the car stopped because we were at a four way intersection and were fixing to roll on into the middle of it.
There was a young man in the car behind us that noticed something wrong; he jumped out of his car and got our car stopped before it when on into the middle of the four way intersection. He helped me to get Harold to the hospital. Within half an hour he had died of a massive blood clot to the heart. I didn’t even have time to call the kids in to say goodbye.
NOTE: It was this happening, dying from a blood clot and being a free bleeder, that in later years allowed us children and grand children to find out that not only had he been a free bleeder, he had a rare form of it called Von Willebrand. Ten percent of all free bleeders have this. It goes into highs and lows; one time you could die from a scratch and the next time you could almost cut an arm off and bleed very little. Of that ten percent; ten percent of the females are not only carriers; they can be bleeders themselves. My nephew, Jason, just had twins born in July 2011. The boy, Ewen tested negative; and the girl, Cara, tested positive for Von Willebrand.

Tuesday, March 13, 2012

Schedules


2010 – December and 2011 – January - Doctors Schedules
Dec. 31, 2010 – Dr. Heilig, Winchester, KY: Dr. Heilig removed fifty eight cc’s of fluid from mother’s shoulder; this seemed to give her some relief.
Jan. 4, 2011 – Troy Brooks PA-C, Stanton, KY: Follow up ER visit E’town 606-663-2511 In one of these records from 2004, there was a report about a spot on her bladder. The doctor had never followed up on it and mother did not know anything about it; so when we went to see Troy Brooks, I took the binder with her records in it and showed him the one about the spot on her bladder. Mother was still in a lot of pain even though she was on pain medication; nothing seemed to give her any full time relieve. Troy scheduled a CT at the hospital in Winchester
Jan. 5, 2011 – Clark Regional, Winchester, KY – CT of back, shoulder
Jan. 6, 2011 – Troy Brooks PA-Stanton, KY: follow up for CT; Troy called us as soon as he got the results back and wanted to see mother as soon as possible. I woke her up and took her in that same morning. There were three masses, one in the bladder, one in the kidney, and one in the lung. Troy started scheduling more tests to see what could be done about the masses.
Jan. 10, 2011 - 12:30 PM Central Baptist Hospital, Dr. Anthony G. Rogers, Lexington, KY We saw Dr Rogers about the lung mass; he set up a PET; which I researched. It was to be done on January 13, 2011.
Jan. 12, 2011 – 3:30 PM Freddie L Terrell, MD, Winchester, KY: We saw Dr. Terrell about the bladder mass. He told mother he could schedule another appointment for a test or he could go on and docthe procedure right then to determine if it was cancer or not. Mother told him she didn’t see any reason to wait and wonder; just get it over with.
The final diagnosis was Bladder Cancer. He told mother that he thought she should wait until the needle biopsy was done to decide what to do. Mother agreed with him. We scheduled another appointment for Feb 23, 2011 1:30 PM – we later canceled this appointment.
Jan 13, 2011 – 9:30 AM Lexington Diagnostic Center, Lexington, KY PET
Jan 13, 2011 – 1:00 PM University Inn, Lexington,, KY 40503 859-278-6625
Jan 13, 2011 - 4:15 PM, Central Baptist Hospital Pre-Admission Testing Appointment
2011 - January 14, – 10:00 AM, Central Baptist Hospital, Lexington, KY             CBH Bldg D, Tower Elevators, Lung Biopsy
Jan 14, 2011 – 10:00 AM, Central Baptist Hospital, Lexington, KY      CBH Bldg E, Tower Elevators, 2nd Floor, Bronchoscope
Jan 21, 2011 – 2:00 PM Dr. Heilig, Winchester, KY follow-up on the shoulder and hip
Feb 4, 2011 - 9:45 AM Dr. Troy, Stanton, KY; follow-up on tests from Jan 10th, 12th, and 13th
Jan 17, 2011 – 12:45 PM, Dr. Anthony G. Rogers, Lexington, KY:  Results of lung biopsy
Feb 23, 2011 1:30 PM Dr. Heilig Call after results from lung, We canceled this appointment.

Monday, March 12, 2012

Beginning of the Final Journey

2010 - December 27 – Beginning of the Final Journey Home
Memory from Alberta’s Daughter, Anne
It was 7:30 AM; the phone rang; the caller ID showed it was my mother. This was not an unusual thing for her to call me early in the day; what was not usual was the pain and panic I heard in her voice. “Anne, I’m not sure what I need to do here”, she was saying. My mind raced with all the things that could happen to an eighty four year old still living on her on. She continued, “I’m in so much pain I’ve been taking those Lora tabs the doctor gave me.” Considering how high mother’s pain tolerance has always been I was surprised and shocked.
“Mother, what’s going on? What kind of pain are you having?” I asked.
“My shoulder and my hip are hurting so bad I just can’t seem to get any kind of relief.” She answered. “Should I call 9-11 or should I call Brother Elmer?” Brother Elmer is our pastor at the church mother attends regularly and the one I am still a member of. If it weren’t for Brother Elmer, his wife Anita, and Brother Doug, a deacon in our church I would have been worried about mother all the time. I had her call Brother Elmer.
Mother was at the hospital over eight hours; was given a shot of morphine and sent home to consult her family doctor.
When her doctor didn’t call her back she called me and asked me to try from Stanton to call Elizabethtown to get an appointment made. Her doctor didn’t call me back either, so I made arrangements to have her see, Dr. Heilig, the shoulder doctor she had been going to in Winchester and my doctor in Stanton, Troy Brooks, a Certified Physicians Assistant, was someone mother trusted.
2010 - December 30 – My Birthday and Picking up Records From the Hospital
When I went to the hospital to pick up the record for her December 27th visit, I was given her records all the way back to 1994. I am a firm believer in God always having a reason for everything; so I started a very large notebook and put her records in chronological order, from 1994 to the December 27th visit.
As I put the records into the notebook I come across a report from 2004 that shows a spot on her bladder; the doctor had never followed up on the report. When I asked mother why not she said that was the doctor that had moved back to New York and that she didn’t know anything about there being a spot on her bladder.
When we went to the appointment with Troy Brooks I took the note book with me and showed him the report. He scheduled a CT scan to be done at Clark Regional Hospital in Winchester, KY. The scan would show exactly what was going on and hopefully would let him be able to do something more than medication for her pain.
The CT was done on January the 5th. The phone rang at 9: AM the next morning; January 6th. It was Troy’s nurse; he wanted to see Mother as soon as possible. With a sense of foreboding, I said we would be there by 10:00 AM.
We were shown to a room almost as soon as we arrived. I knew as soon as I saw Troy’s face the news wasn’t good. Troy told us there were three masses; one in the bladder, one in the kidneys, and one in the lung.
Mother cried briefly. Troy gave her a hug, gently patting her shoulders. Then Mother looked up at Troy and asked, “Where do we go from here? What comes next?”
Troy told Mother that with her permission he would schedule some more tests to be ran that would tell if the masses were cancer or benign and then we would know how to proceed.
Mother told him then that was what we would do. By the time we left the office there were several tests scheduled to be done in the following weeks. Including a follow up appointment with Troy on February 4th.

Sunday, March 11, 2012

2010 December Pneumonia


2010 – December 10– From Mother’s Tape, that date –
Pneumonia again; I just can’t seem to shake the stuff and not get it again. I had the shot this year just like the past three years. I asked the doctor why I still got it and he said the shots weren’t to keep me from getting pneumonia; it was to keep me from getting as bad. Sometimes I think Mom may have been right; all these shots they say us old folks need to take are just to help us to hurry along on home. Well, I guess that’s okay; I’ve got my suitcase packed, I’m just not homesick yet.
A soft laugh follows. Even when she was sick, she had her sense of humor.

Saturday, March 10, 2012

Gorilla Glue


Gorilla Glue
When I lived in Upton, Kentucky, Anita and Brother Elmer came to visit me. The chair that Anita sat down in collapsed from under her. I was going to throw the chair away but Brother Elmer told me to get Gorilla Glue and he would be able to fix the chair.
I guess I didn’t pay as much mind as I thought I had because when I went into Lowe’s looking for my glue I couldn’t find it. There was a man there in Lowe’s putting up stock and he asked if I had found everything all right. “No,” I told him “I can’t find the Giraffe Glue.”
The man dropped his head, kinda laughed to himself, turned loose of his cart and said, “Come on I think I know what you are looking for and I will show you.”
When I saw that he had picked up Gorilla Glue and not Giraffe Glue I said, “Well, I knew it was something big and strong; guess I know now it is gorilla and not giraffe.”
The man said, “Lady that is the best laugh I’ve had in a long time. Thank you for making my day better.”
I could hear him as I was checking out and he was still laughing when I left the store.
Note: When we heard this story, Sis and I bought a miniature palm tree, a miniature gorilla, and a miniature giraffe which we gave to mother as a joke. I guess the joke was on us; she kept those small items in her kitchen window until she moved in with me December 2010.

Friday, March 9, 2012

Trip to Nashville

2010 - March 10 – From Mother’s Tape, that date - Trip to Nashville
I’ve been sitting here rocking, listening to the tapes and trying to figure out what that noise is. I just realized that noise on the recorder is my rocking chair; so when you hear that noise you will know that mom is a rocking.


I wanted to talk about mine and Faye’s vacation to Nashville. We were going to go to Virginia Beach. Faye had called and we were talking back and forth and she said, “Sis I need a vacation and I think I want to go to Virginia Beach.

I had been taking care of Jim (J. C. Jennings) before his death. I had talked about needing a vacation for sometime. Faye told me about going to Newport News, Virginia when her son Phil was stationed there and how much she had enjoyed it. They had gone to Virginia Beach and that was the place to go. So we decided we would go, but not tell Mom Shoupe. Mom had a habit of inviting a bunch of kin to her house and then calling me to come and cook and clean for the lot of them. This was something that I normally liked; but I just wasn't up to it at the time. I was still missing Jim and needed a break.


Darline and Dana were staying with me, while Dan was in process of being discharged. So I told Darline that Faye and I were going to take a vacation but not tell Mom. I figured it was about time for Mom to pull one of these family get to gathers, and I knew I wasn’t up to it.


Sure enough Mom called just before we left, she had invited Aunt Myrtle’s kids, Dalma from Ohio, A. D. and his wife, their little boy, Betty Lou and Bob all in. She called and said, “Faye came in unexpected and I’ve invited all the gang. Bring your big coffee pot gal and get started cooking.”


I told her that I knew Faye was in but it wasn’t for a long visit, but for a vacation that Faye and I were going to take. “Not without me, you’re not!” ”Oh yes I am.” Well Mom and Faye had been arguing about the vacation all ready with Faye telling her she was coming to my house after breakfast and Mom telling her no she wasn’t without her.


Faye came to my house after eating breakfast with Mom. Well Mom started to pout. She called me and told me that Faye had said she couldn’t go but she knew I would let her. I never could stand up to Mom like Faye could, she was working on the weakest link.


I told her, “Mom, Faye is right this time. I need a vacation. I really do need to get away. You can’t go.” I knew Faye would kick my butt if I gave in.


We got away from the house without Mom; Darline was laughing her butt off because she thought it was so funny that two grown women were arguing with their mother like that. But we had held our ground and were on our way to Virginia Beach.


We really did have every intention of going to Virginia Beach. But it was dusky dark by the time we got to Nashville so we decided we would stay in Nashville for the night. We stopped at a Holiday Inn there in Nashville.


We got our stuff out of our car and went to eat in the Holiday Inn dining room. Just before we got through eating we could hear a band striking up. And boy was it good! It sounded like it was just around the corner from us. We decided as soon as we got through eating we would go check it out.


Not only was there a live band, there was a dance floor! Jim and I had gone dancing and listening to bands before he got sick; but Jim had been sick a long time before he died with cancer, so it had been a long time since I had been near a dance floor. Faye and I decided we would go in and at least hear the band play.


We sat down at a two seater table. People started coming in; but they were all men! The first couple of men that came in, asked if they could join us and when we said yes, they scooted a two seater table over and joined it to ours. As new men came in they would scoot another two seater table over; another two seater; and another; until there was a string of twenty men sitting with us!


The guys wanted to start dancing. Just us two women and twenty men! When that first man asked me to dance, I said yes. So another man asked Faye to dance and she said yes. Between us and those twenty men we danced with all of them at least once.


We figured they were all married; but we didn’t want to get married and neither one of us wanted a man; just to dance; so we figured it would be okay. We were just having some good clean fun.


It turned out that the first man I danced with was retired military. He told me that this same group met there once a year and had a conference. He also told me he was married to a Japanese woman and had three kids. He showed me pictures of his wife and kids.


We really enjoyed dancing and listening to the music. Well I didn’t have a cell phone, and neither did Faye. I still don’t have one. I wouldn’t know how to use it if I did. At any rate we decided we needed to call home.
Darline had promised me that she would go and get groceries or anything else that Mom Shoupe needed. But we still wanted to be sure that everything was okay at home, so we called. We found out that Mom was mad at both of us because we hadn’t told her we were going on vacation and that we hadn’t taken her when we decided we were really going to go. Now she was mad at Darline too because she told her she didn’t know where we were and wouldn’t give her a number where she could reach us. She thought Darline was lying.


We were going to give Darline the number but told her not to give it to Mom, or she would be calling us constantly. Darline told us no she didn’t want to know where we were and did not want the number; that way she wouldn’t be telling a lie when she said she didn’t know and didn’t have a number.


After we talked to Darline that night next; the next day we went on a tour with the Greyline Bus Tour. We forgot all about going to Virginia Beach. We traveled all over Nashville; then went on a General Lee Ship for a boat ride. We saw different stars than the ones at home, Music City you know. On the deck of the General Lee there were people playing and singing; we thoroughly enjoyed that trip; just having good clean fun.


The men we had danced with the night before had asked if we would be there to dance that night. We had told them yes but that if we did it would be for us and not them because we were not on a schedule; we were on vacation and just having good clean fun. We might be there after we ate.


But we didn’t have any supper, just went on down to the music. We ordered drinks. I hadn’t had anything to drink in an ion of years. So I just sat there and sipped, pretended that I was drinking; but after a while that drink tasted pretty good. I soon forgot my worries and my troubles. Yes, that drink had a pretty good taste.


We decided that we were going back to our room. Those men walked us to the door. That was when we found out that we were downstairs from them upstairs. When we got back to the room Faye called Russell.
Mom had called Russell trying to start trouble, she said we were down there messing around with men and we were where we don’t have any business. Russell had told her Faye had a credit card, enough money and if she didn’t have enough money, she had a check book and could get some more money. So now Mom was mad at everyone. She was on the warpath.


Although Faye had been use to liquor while she worked at the Ford motor company and had drunk pretty often, she wasn’t use to drinking now. So next morning, not being use to drinking; we both had diarrhea and were sick at our stomachs. We decided not to do anything today, just to sit around pool.
Faye said, “You know Sis, it always made me feel better to have a little hair of the dog.” So Faye went to get some liquor, just a little bottle of it, we used the glasses and the ice in our room and took our drinks to the pool with us.


It was May; for May the sun was pretty warm. In fact that was the hottest May we had ever had. So we were just sitting in the sun, sipping our drinks, and fell asleep. We got sun burnt really bad. Later on we found out that drinking and sitting in the sun will make the sun light worse. You will burn a little quicker. We found that out the hard way, we were both blistered.


Faye could swim, I couldn’t. Pop had always told us not to go near the water until we had learned how to swim. Faye had gone not only near the water but into the water and learned how to swim. So she tried to cool herself off by swimming. Anyway, the blisters started raising, we didn’t think we had been out that long,
I sat on one bed, her on the other. We could see the blisters raise and pop. I couldn’t even put on my bra; and I don’t go anywhere without my bra. We took baths, and the blisters raised even more. We couldn’t stand clothes on.


Faye said we needed to let someone know where we are in case we died. I told her that was a bunch of foolishness; She said to at least call emergency room. So I called the emergency room at Baptist Hospital. I told the man that answered the phone that my sister and I both had diarrhea and were both sun burned with blisters popping and running. He wanted to know how it had happened so I had to tell him that neither of us was use to drinking and the whole story of what had happened. Faye kept asking if we were going to die. He said you could die if you had enough of the sun. Faye kept asking if they could have someone to call and check on us.


The man told us to get vinegar, and pour over the sun burned areas. I told him we were both pretty good size women; we would need a bath tub full of vinegar to cover us. He laughed at that.


So here we were diarrhea, sick at our stomachs, and sun burnt. I knew we would have to get something to doctor with. So I broke my cardinal rule of not going anywhere without a bra on. I put on a baggy shirt, no bra, and a loose pair of shorts. I found out that even the tops of my feet were burnt. I drug up to top of the hill to the Days Inn, I didn’t want anyone from the Holiday Inn to see me. I knew there was a restaurant at the Days Inn too. So I went to side door and asked to speak to the manager. When she came to the door I asked if she had any vinegar.


She told me that she only had one gallon of vinegar and that she would need that to use for salads and all since it was the weekend; but she could probably spare one cup. I told her I would take all she could spare. I don’t even remember what I paid for that small, really small, coffee cup of vinegar.


When I got back to the room I halved that cup of vinegar with Faye. I took my half and poured it into the ice bucket, added water; then I used a wash cloth to put the vinegar water on my shoulders, which were worse. Faye was worse on her legs and arms. Faye tried to use hers in the bath tub. In a little bit I heard her cussing and raring because it had leaked out of the tub.

She asked me, “Can I use some of yours? Mine has all gone down drain.” So she got another was cloth and used mine too. No dining room tonight for sure! What with no bra and not being able to stand clothes on. We couldn't dance, no matter what kind of music it was.


So when those guys knocked on our door, we pretended we weren’t there. Our car was out front in the parking lot but we didn’t answer the door. We hid from those guys for the rest of the week. By Friday, when they left, we had gotten better. We thought we were safe so we went outside.
We could hear music coming from up the lane, so we followed our ears. There was a little place there called Gabe’s Place. It was a little country music joint and they had a guitarist, a drummer, and one guy that played a keyboard, playing there. We were sitting at a table and this woman came up and joined us and told us that the men in the band were from the Grand Ole Opry.
 She told us that was her husband was the man playing keyboard. So we got acquainted with the wives and girlfriends of the musicians from the Grand Ole Opry and they invited us to go next night to the Grand Ole Opry.


We started counting how much money we had and found out that we had spent more than we thought. I had bought Kaopectate at the BP One Stop Service there. They hadn’t had any vinegar but they had had Kaopectate. I had bought that vinegar from the Days Inn and Faye had finally got well enough she had gone and gotten more vinegar and stuff to help us get better. The motel was over a hundred dollars a night.


We had had a pretty good amount of money when we left out but we were in Nashville and everything was double and sometimes more than double because there was no choice, you paid or else. We had gone on the bus tour and for a boat ride. Now we were about out of money. We had both maxed out our credit cards. We had spent our cash on shopping and all before got sun burnt. So we decided that we were spent out. Instead of going to the Grand Ole Opry we had better be headed home.


We had a continental breakfast at the motel before we headed out for home. We were aways down the road, almost to Cave City, when we saw a sign that said, “Foot long hot dogs and milk shakes.” We didn’t have that much cash on us and we knew we couldn’t charge them to our credit cards, they were maxed out.
When we counted our change we had enough for one milk shake and one foot long hot dog. We split that milk shake and that one foot long hot dog; and it tasted really good!


We told everyone what a good trip we had going to Nashville; and it was! We really had a good trip. It took me three years to pay off my credit card and we didn’t make it to Virginia Beach. In fact we haven’t been there yet!